Sometimes it can seem like health professionals speak a different language. A visit to a hospital emergency room or a specialist doctor’s office can seem like a visit to a foreign land. When we feel worried about a loved one’s health condition, it can be hard to keep up with everything being said by a doctor or nurse.
It’s important to communicate clearly with health professionals. Good communication helps you be a more effective caregiver, leads to better care, helps family members feel like part of the healthcare team, and helps people clear up confusion quickly.
Family Caregivers as Team Members
The role of the family caregiver is to serve as an effective member of the healthcare team, along with the patient, doctor, nurse, social worker, therapists, and other team members. Your goal is to help your loved one navigate the healthcare system and get the best quality care possible. Here is a list of key activities for you as a team member:
- Set up a file with detailed records of important medical information.
- Go to appointments with your loved one and speak up for him or her, as needed.
- Write down notes during appointments.
- Ask questions about anything that is not clear or sounds complicated.
- If you disagree or have a concern, speak up!
- Ask others to listen to your loved one’s concerns in his or her own words.
- Provide progress reports to health professionals.
- If your loved one’s needs are not being met by his or her team of health professionals, find a new team.
Four Keys to Effective Communication
We can all improve our communication skills. Researchers have found four key ways that we can strengthen communication in healthcare:
Be fully present.
- Before entering the doctor’s office or other health setting, take a moment to calm your mind. Breathe deeply.
- When you greet the health professional, make eye contact.
- Stay in the present moment – don’t worry about what happened last night or what you are going to do later in the day.
- Set a positive tone.
- Maintain a strong sense of yourself.
- Be prepared.
- Clearly state your purpose.
- Offer information about your loved one’s condition.
- Ask questions.
- Assert yourself. Asserting yourself is not the same as being aggressive or being rude or irritable. When you assert yourself, you ask questions, clearly state what you want, offer compromises, and set limits about what is acceptable in a care plan.
- Really listen—carefully and with your full attention.
- If you hear something you don’t understand, ask the health professional to clarify the point.
- Show that you understand what someone is saying by repeating it back in your own words.
- Avoid assumptions. Allow others to finish speaking. Don’t jump to conclusions before hearing the full information.
- State difficulties and concerns. Ask for help in understanding the reasons for treatment choices and recommendations.
Encourage working together.
- Focus on goals that you, your loved one, and the health professional can agree upon.
- Be clear about who is responsible for what. If needed, get extra help along the way with certain tasks.
- Speak openly and honestly.
- Help with problem solving. Share information that you have that can help the health team make good decisions about care.
- Express appreciation. Along the way, say “thank you” to health professionals wh give you help. These words mean more than you can imagine.
Ways to Enhance Communication
Here are some simple, powerful ideas that can help when talking with health professionals:
- Be honest about your needs and expectations. If you aren’t getting them met, say so.
- Be clear about what you want to say. Be brief and try not to ramble.
- Make a separate consultation appointment if you have a lot to discuss.
- Don’t blame the health professional for the patient’s condition, even when you’re frustrated and angry. Blaming won’t help and it makes it harder for the health professional to take care of the patient.
- Say “thank you” occasionally for help and care provided.
How to Support Treatment Plans
- Make sure your care recipient follows medical instructions. If you have any questions or doubts about what is to be done, call and ask.
- Come prepared. Bring complete information about the patient’s current symptoms, condition, medication, and therapies.
- Be a good reality check. Help the patient not to exaggerate, dramatize, or under-report symptoms.
- Reach out for help if something changes. Don’t attempt to play doctor yourself.
- Tell the doctor when you seek a second opinion. It’s okay. Health professionals are used to this and usually find a second opinion to be helpful.
- Educate yourself about the particular disorder your loved one has. Share what you learn with health professionals. They won’t always have all the answers or know the latest research about a particular disorder.
Respect Health Professionals’ Limits
- Be respectful of health professionals’ time and emotional limits
- Be patient; most health care offices are busy and see many patients every day
- Learn the office routine – including the best time to call with medical questions, how to make appointments, and the name of the person who handles billing information.
Brief version of information
Reference: National Family Caregivers Association
We hope this information is helpful to you in the important work you do as a family caregiver.
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